Following up on the report of a Novartis data manipulation scandal last week, the Boston Globe's STAT reports that
The company previously said it was “in the process of exiting” scientists who were responsible for the scandal but did not identify them. In a statement on Wednesday, Novartis (NVS) said that it had appointed a new chief scientific officer for AveXis and that other scientists, Brian and Allan Kaspar, “have not been not been involved in any operations at AveXis since early May 2019,” without elaborating.
The person familiar with the situation, who spoke on condition of anonymity, confirmed that the departure of the Kaspars, who are brothers, was connected to the disclosure of data manipulation related to the gene therapy Zolgensma.Consumer health technology company Ciitizen reports launching a scorecard grading healthcare providers on the level of their cooperation with HIPAA's individual right to access their medical records. Citizen explains
We plan to refresh the scorecard every few months based on the most recent record requests sent to a particular provider - so improvement and consistency in good performance can be rewarded (and consistency in poor performance can also be brought to public attention).
In conjunction with the scorecard, we also released survey of 3003 hospitals and healthcare systems who responded to anonymous questions about their record release processes. Their responses suggest that 56% of health care providers are out of compliance with one or more aspects of the HIPAA Right of Access.Here's a link to the HHS website that explains this individual right. This right also is discussed in your healthcare provider or your health plan's HIPAA notice of privacy practices.
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